Public Briefing on Upcoming National Research Council Report: Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease

At the request of the Director’s Office of National Institutes of Health, an ad hoc committee of the National Research Council explored the feasibility and need, and developed a potential framework, for creating a “new taxonomy” of human diseases based on molecular biology. The committee took the feasibility, need, scope, impact, and consequences of defining this new taxonomy into consideration for this report. The committee considered the essential elements of the framework by addressing topics that include, but are not limited to:

– Compiling the huge diversity of extant data from molecular studies of human disease to assess what is known, identify gaps, and recommend priorities to fill these gaps.

– Developing effective and acceptable mechanisms and policies for selection, collection, storage, and management of data, as well as means to provide access to and interpret these data.

– Defining the roles and interfaces among the stakeholder communities — public and private funders, data contributors, clinicians, patients, industry, and others.

– Considering how to address the many ethical concerns that are likely to arise in the wake of such a program. 

When: November 2, 2011 9:30 AM
Where: National Press Club – Washington, D.C.  

Please join several members of the authoring committee at the National Press Club at 9:30 for a public briefing on this report.

Register for the briefing here: https://dels.nas.edu/Upcoming-Event/Public-Briefing-Toward-Precision-Medicine-Building/DELS-BLS-10-03